Advocacy

Alone we can do so little; Together we can do so much. -Helen Keller

The Lone Star Bleeding Disorders Foundation is a member of the Texas Bleeding Disorders Advocacy Coalition. We advocate at the state and federal level on issues important to the bleeding disorders community. The Coalition is a joint effort of the Lone Star Bleeding Disorders Foundation and Texas Central Hemophilia Association. Learn more about the coalition at txbdcoalition.org.

News from HFA

Pfizer Issues Update on BeneFIX® (coagulation factor IX recombinant)
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Astellas Reports Fourth Death In Orphan Disease Gene Therapy Clinical Trial
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Important Update Regarding Availability of Stimate
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National Hemophilia Foundation and Hemophilia Federation of America Partner for “Together Project”
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Washington Wire: August 2021
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Advocacy

Alone we can do so little; Together we can do so much. -Helen Keller

Advocate

Advocate

News from HFA