Recursos

Centros de Tratamiento de Hemofilia

Muchas personas con trastornos hemorrágicos utilizan los recursos de su centro de tratamiento de la hemofilia (HTC, por sus siglas en inglés). Las personas que acuden a centros de tratamiento de la hemofilia no sólo encontrarán lo más novedoso en atención médica, sino que también se beneficiarán de un personal con experiencia y atento que se toma el tiempo necesario para desarrollar planes integrales de atención terapéutica para los pacientes y sus familias.

Centros de Tratamiento de Hemofilia Locales:

Gulf States Hemophilia & Thrombophilia Center
6655 Travis, Suite 100
Houston, TX 77030
Phone: 713-500-8360
Texas Children’s Hemophilia & Thrombosis Center
6701 Fannin Street
Suite 1580
Houston, Texas 77030
Phone: 832-822-4362
Children’s Blood and Cancer Center of Central Texas – Dell Children’s Specialty Pavillion
4910 Mueller Blvd Ste 200
Austin, TX 78723
Phone: 512-628-1900
South Texas Hemophilia Treatment Center
Gateway Medical Park
8435 Wurzbach Road
San Antonio, TX 78229
Phone: 210-567-7000

Programas de Asistencia

El trabajador social de su Centro de Tratamiento de Hemofilia puede ayudarle a buscar recursos de asistencia financiera.

Póngase en contacto con su trabajador social para obtener una solicitud de remisión de LSBDF Helping Hands.

Programa de asistencia para la hemofilila

Sitio web

Programa de asistencia para la hemofilila

Programa de asistencia de hemofilia ayuda a los tejanos con hemofilia a cubrir sus facturas médicas. Se proporciona asistencia con productos de sustitución del factor sanguíneo o reembolso del pago de prima del seguro médico.

¿Quién es eligible para los servicios?

HAP está disponible para cualquier persona que:

Vive en Texas
Es mayor de 18 años
Tiene un ingreso igual o inferior al 200 por ciento de las Directrices Federales de Pobreza
Tiene un diagnóstico de la hemofilia de un médico con licencia
No está encarcelado o bajo la tutela del estado
No es eligible para el Programa de Niños con Necesidades Especiales de Servicios de Salud, Medicaid o Medicare.

La Fundación PAN

https://www.panfoundation.org

News from HFA

Advocacy News: March 2024
Word From Washington Federal Agencies According to the latest KFF Medicaid Unwinding Enrollment Tracker, more than 19 million Americans have lost Medicaid coverage since states were allowed to resume eligibility verifications following the COVID-19 public health emergency (PHE). At least 70 percent of Medicaid terminations continue to be for procedural reasons (such as not returning The post Advocacy News: March 2024 appeared first on Hemophilia Federation of America.
Update on Smithsonian Institution Project to Archive Bleeding Disorders History
Hemophilia Federation of America announced, in April of 2019, a partnership with the Smithsonian Institution to document the history of the bleeding disorders community, with a focus on the tragic experiences with contaminated blood, and we’re pleased to announce the first phase of the project is complete. HFA began an initiative to collect artifacts and The post Update on Smithsonian Institution Project to Archive Bleeding Disorders History appeared first on Hemophilia Federation of America.
Advocacy News: February 2024
Word From Washington State of the States The post Advocacy News: February 2024 appeared first on Hemophilia Federation of America.
Scholarship Recipient: Michael Potanin
2023 HFA Educational Scholarship Johns Hopkins University, Maryland I am honored to have been chosen as a recipient of the HFA Educational Scholarship. This recognition provides immense support to me as I pursue my education and career goals. As a hemophiliac who has personally experienced the challenges of living with a genetic disorder, I am The post Scholarship Recipient: Michael Potanin appeared first on Hemophilia Federation of America.
Scholarship Recipient: Porus Pavri
2023 HFA Educational Scholarship Rutgers University, New Jersey As an individual with hemophilia, my journey has been shaped by both challenges and determination. These experiences have propelled me towards pursuing a business major and setting ambitious future goals. I believe that the intersection of my personal circumstances and academic aspirations is a unique space where The post Scholarship Recipient: Porus Pavri appeared first on Hemophilia Federation of America.