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Eventos

Noche de Casino Negro y Azul

La Noche de Casino Negro y Azul es una velada divertida para la comunidad de trastornos hemorrágicos y sus patrocinadores. Los asistentes disfrutan de una noche de buena comida, baile, juegos de casino y premios, mientras recaudan dinero para los programas y servicios de la Fundación de Trastornos Hemorrágicos Lone Star.

La Noche de Casino Negro y Azul de Estrellas, se programó para el 22 de marzo de 2020. Estamos buscando opciones para reprogramar el evento. ¡Visítenos nuevamente para mantenerse actualizado y para más detalles!

MAS…

Días de Educación Familiar

En la primavera/Verano de cada año, la Fundación de Trastornos Hemorrágicos Lone Star organiza jornadas regionales de educación familiar. MAS…

Camp Ailihpomeh

UNITE for Bleeding Disorders Walks

The Lone Star Bleeding Disorders Foundation was one of five inaugural sites of the National Hemophilia Foundation’s Hemophilia Walk Program in 2008. It started in Houston, and has grown to Austin and the Valley. This year, we are excited to be a part of the UNITE for Bleeding Disorders Walk, for all bleeding disorders! MAS…

Conferencia de Trastornos Hemorrágicos de Texas

La Conferencia de Trastornos Hemorrágicos de Texas es un esfuerzo conjunto entre la Fundación de Trastornos Hemorrágicos Lone Star y Trastornos Hemorrágicos Texas Central, que reúnen a más de 800 personas de todo el estado de Texas para un fin de semana de educación, creación de redes y diversión. MAS…

News from HFA

  • Advocacy News: March 2024

    Word From Washington Federal Agencies According to the latest KFF Medicaid Unwinding Enrollment Tracker, more than 19 million Americans have lost Medicaid coverage since states were allowed to resume eligibility verifications following the COVID-19 public health emergency (PHE). At least 70 percent of Medicaid terminations continue to be for procedural reasons (such as not returning The post Advocacy News: March 2024 appeared first on Hemophilia Federation of America.

  • Update on Smithsonian Institution Project to Archive Bleeding Disorders History

    Hemophilia Federation of America announced, in April of 2019, a partnership with the Smithsonian Institution to document the history of the bleeding disorders community, with a focus on the tragic experiences with contaminated blood, and we’re pleased to announce the first phase of the project is complete.   HFA began an initiative to collect artifacts and The post Update on Smithsonian Institution Project to Archive Bleeding Disorders History appeared first on Hemophilia Federation of America.

  • Advocacy News: February 2024

    Word From Washington State of the States The post Advocacy News: February 2024 appeared first on Hemophilia Federation of America.

  • Scholarship Recipient: Michael Potanin

    2023 HFA Educational Scholarship Johns Hopkins University, Maryland I am honored to have been chosen as a recipient of the HFA Educational Scholarship. This recognition provides immense support to me as I pursue my education and career goals. As a hemophiliac who has personally experienced the challenges of living with a genetic disorder, I am The post Scholarship Recipient: Michael Potanin appeared first on Hemophilia Federation of America.

  • Scholarship Recipient: Porus Pavri

    2023 HFA Educational Scholarship Rutgers University, New Jersey As an individual with hemophilia, my journey has been shaped by both challenges and determination. These experiences have propelled me towards pursuing a business major and setting ambitious future goals. I believe that the intersection of my personal circumstances and academic aspirations is a unique space where The post Scholarship Recipient: Porus Pavri appeared first on Hemophilia Federation of America.