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Recursos

Trastornos Hemorrágicos

Los trastornos hemorrágicos son un grupo de trastornos que comparten la incapacidad de formar un coágulo sanguíneo adecuado. Se caracterizan por hemorragias prolongadas tras lesiones, intervenciones quirúrgicas, traumatismos o menstruaciones. A veces la hemorragia es espontánea, sin una causa conocida o identificable. La coagulación inadecuada puede deberse a defectos en los componentes de la sangre, como las plaquetas y/o las proteínas de la coagulación, también llamadas factores de coagulación. MAS…

Centros de Tratamiento de Hemofilia

Muchas personas con trastornos hemorrágicos utilizan los recursos de su centro de tratamiento de la hemofilia (HTC, por sus siglas en inglés). Las personas que acuden a centros de tratamiento de la hemofilia no sólo encontrarán lo más novedoso en atención médica, sino que también se beneficiarán de un personal con experiencia y atento que se toma el tiempo necesario para desarrollar planes integrales de atención terapéutica para los pacientes y sus familias. MAS…

Factor Friends Newsletter

Adicional Recursos

The National Hemophilia Foundation is dedicated to finding better treatments and cures for bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. MORE…

News from HFA

  • Advocacy News: March 2024

    Word From Washington Federal Agencies According to the latest KFF Medicaid Unwinding Enrollment Tracker, more than 19 million Americans have lost Medicaid coverage since states were allowed to resume eligibility verifications following the COVID-19 public health emergency (PHE). At least 70 percent of Medicaid terminations continue to be for procedural reasons (such as not returning The post Advocacy News: March 2024 appeared first on Hemophilia Federation of America.

  • Update on Smithsonian Institution Project to Archive Bleeding Disorders History

    Hemophilia Federation of America announced, in April of 2019, a partnership with the Smithsonian Institution to document the history of the bleeding disorders community, with a focus on the tragic experiences with contaminated blood, and we’re pleased to announce the first phase of the project is complete.   HFA began an initiative to collect artifacts and The post Update on Smithsonian Institution Project to Archive Bleeding Disorders History appeared first on Hemophilia Federation of America.

  • Advocacy News: February 2024

    Word From Washington State of the States The post Advocacy News: February 2024 appeared first on Hemophilia Federation of America.

  • Scholarship Recipient: Michael Potanin

    2023 HFA Educational Scholarship Johns Hopkins University, Maryland I am honored to have been chosen as a recipient of the HFA Educational Scholarship. This recognition provides immense support to me as I pursue my education and career goals. As a hemophiliac who has personally experienced the challenges of living with a genetic disorder, I am The post Scholarship Recipient: Michael Potanin appeared first on Hemophilia Federation of America.

  • Scholarship Recipient: Porus Pavri

    2023 HFA Educational Scholarship Rutgers University, New Jersey As an individual with hemophilia, my journey has been shaped by both challenges and determination. These experiences have propelled me towards pursuing a business major and setting ambitious future goals. I believe that the intersection of my personal circumstances and academic aspirations is a unique space where The post Scholarship Recipient: Porus Pavri appeared first on Hemophilia Federation of America.