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Recursos de salud mental

Gestionar un trastorno hemorrágico es mucho más que gestionar los síntomas físicos del trastorno. También afecta a la salud mental. El estrés que sufren el paciente, el cuidador y toda la familia es real. A continuación encontrará algunos recursos que le ayudarán a superar el aspecto emocional de padecer un trastorno crónico.

Siempre puede ponerse en contacto con el trabajador social de su Centro de Tratamiento de Hemofilia si necesita ayuda. La asociación también está a su disposición.

Lo invitamos a que participe en la asociación y asista también a los eventos. ¡Contar con una comunidad de apoyo es una parte importante de su cuidado!

National Council for Mental Wellbeing

American Foundation For Suicide Prevention

Crisis Text Line

HFA Learning Central 

New Harbinger Publications

News from HFA

  • Advocacy News: March 2024

    Word From Washington Federal Agencies According to the latest KFF Medicaid Unwinding Enrollment Tracker, more than 19 million Americans have lost Medicaid coverage since states were allowed to resume eligibility verifications following the COVID-19 public health emergency (PHE). At least 70 percent of Medicaid terminations continue to be for procedural reasons (such as not returning The post Advocacy News: March 2024 appeared first on Hemophilia Federation of America.

  • Update on Smithsonian Institution Project to Archive Bleeding Disorders History

    Hemophilia Federation of America announced, in April of 2019, a partnership with the Smithsonian Institution to document the history of the bleeding disorders community, with a focus on the tragic experiences with contaminated blood, and we’re pleased to announce the first phase of the project is complete.   HFA began an initiative to collect artifacts and The post Update on Smithsonian Institution Project to Archive Bleeding Disorders History appeared first on Hemophilia Federation of America.

  • Advocacy News: February 2024

    Word From Washington State of the States The post Advocacy News: February 2024 appeared first on Hemophilia Federation of America.

  • Scholarship Recipient: Michael Potanin

    2023 HFA Educational Scholarship Johns Hopkins University, Maryland I am honored to have been chosen as a recipient of the HFA Educational Scholarship. This recognition provides immense support to me as I pursue my education and career goals. As a hemophiliac who has personally experienced the challenges of living with a genetic disorder, I am The post Scholarship Recipient: Michael Potanin appeared first on Hemophilia Federation of America.

  • Scholarship Recipient: Porus Pavri

    2023 HFA Educational Scholarship Rutgers University, New Jersey As an individual with hemophilia, my journey has been shaped by both challenges and determination. These experiences have propelled me towards pursuing a business major and setting ambitious future goals. I believe that the intersection of my personal circumstances and academic aspirations is a unique space where The post Scholarship Recipient: Porus Pavri appeared first on Hemophilia Federation of America.