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UNITE for Bleeding Disorders Walks

Houston Unite Walk

Saturday, October 21, 2023 – Join us for fun, food, and trunk or treating at Sam Houston Race Park!

Hill Country Unite Walk

Saturday, October 28, 2023 – Join us for food, fun, trick or treating and walking at a beautiful Austin Park – Brushy Creek Lake Park!

By participating in the Unite Walk, you are supporting families with bleeding disorders in many ways.  Funds raised support educational programs to help them manage their bleeding disorder, advocacy efforts to improve access to care, and national research initiatives.  Your donation truly makes a difference!

The Lone Star Bleeding Disorders Foundation was one of five inaugural sites of the National Hemophilia Foundation’s Hemophilia Walk Program in 2008. It started in Houston, and has grown to two events, including the Hill Country.  It is a family-friendly day of fun, exhibits, games, photo booths, music, and more!

 

Because of the generous support of our sponsors and supporters since 2008, The Lone Star Bleeding Disorders Foundation has:

  • Raised awareness of bleeding disorders such as Hemophilia and von Willebrand Disease, hosting over 5,000 walkers, many of who have never heard of bleeding disorders
  • Moved into spacious new office space
  • Began programs specific to our Women/Girls, Teens, and Hispanic Community
  • Make a $10,000 donation to the Judith Graham Pool Fellowship Program at the National Hemophilia Foundation, supporting researchers and doctors finding better treatments and a cure for bleeding disorders.
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News from HFA

  • Advocacy News: March 2024

    Word From Washington Federal Agencies According to the latest KFF Medicaid Unwinding Enrollment Tracker, more than 19 million Americans have lost Medicaid coverage since states were allowed to resume eligibility verifications following the COVID-19 public health emergency (PHE). At least 70 percent of Medicaid terminations continue to be for procedural reasons (such as not returning The post Advocacy News: March 2024 appeared first on Hemophilia Federation of America.

  • Update on Smithsonian Institution Project to Archive Bleeding Disorders History

    Hemophilia Federation of America announced, in April of 2019, a partnership with the Smithsonian Institution to document the history of the bleeding disorders community, with a focus on the tragic experiences with contaminated blood, and we’re pleased to announce the first phase of the project is complete.   HFA began an initiative to collect artifacts and The post Update on Smithsonian Institution Project to Archive Bleeding Disorders History appeared first on Hemophilia Federation of America.

  • Advocacy News: February 2024

    Word From Washington State of the States The post Advocacy News: February 2024 appeared first on Hemophilia Federation of America.

  • Scholarship Recipient: Michael Potanin

    2023 HFA Educational Scholarship Johns Hopkins University, Maryland I am honored to have been chosen as a recipient of the HFA Educational Scholarship. This recognition provides immense support to me as I pursue my education and career goals. As a hemophiliac who has personally experienced the challenges of living with a genetic disorder, I am The post Scholarship Recipient: Michael Potanin appeared first on Hemophilia Federation of America.

  • Scholarship Recipient: Porus Pavri

    2023 HFA Educational Scholarship Rutgers University, New Jersey As an individual with hemophilia, my journey has been shaped by both challenges and determination. These experiences have propelled me towards pursuing a business major and setting ambitious future goals. I believe that the intersection of my personal circumstances and academic aspirations is a unique space where The post Scholarship Recipient: Porus Pavri appeared first on Hemophilia Federation of America.