Austin Days.

Texas Bleeding Disorders Advocacy Coalition

The Texas Legislature meets biannually (every two years on the odd year) and we have developed a strong state based advocacy presence in Texas via the Texas Bleeding Disorders Advocacy Coalition.

In 2012, the Lone Star Chapter of the National Hemophilia Foundation and the Texas Central Hemophilia Association spearheaded an effort to bring together community leaders to establish a state-wide advocacy group, The Texas Bleeding Disorders Coalition.  These key stakeholders encompassed representation from both chapters, a Hemophilia Treatment Center representative and representatives from both NHF and HFA. In 2013, the Texas Bleeding Disorders Coalition was launched to connect advocates across the state to collectively work on issues throughout the year capitalizing on our strength in numbers and our passion to serve the bleeding disorders community. We are united and dedicated to our centralized priorities: ensuring that all consumers have access to high quality medical care at Hemophilia Treatment Centers, access to all clotting medications and access to the ancillary services, support and education needed by our community.

The Lone Star Bleeding Disorders Foundation provides travel scholarships to attend Austin Days.

To find out who represents you, please go to: https://wrm.capitol.texas.gov/home