Women & Bleeding Disorders

It is a common misconception that only men are affected by bleeding disorders. In reality, these conditions can impact anyone, regardless of sex. Von Willebrand Disease (VWD) — the most common inherited bleeding disorder — affects approximately 1% of the population, meaning over 3 million Americans may be living with the condition.

Women who carry hemophilia genes and have low clotting factor levels can also experience abnormal bleeding. These individuals are often referred to as symptomatic carriers and, in some cases, may be considered to have mild hemophilia. In addition to hemophilia and VWD, women and girls can also be affected by rare factor deficiencies (such as factors I, II, V, VII, X, XI, and XIII) as well as platelet function disorders.

Due to the long-standing myth that women do not have bleeding disorders, many go undiagnosed or are misdiagnosed — often with serious consequences. This lack of recognition can lead to untreated, heavy menstrual bleeding that significantly affects quality of life. In some cases, it has resulted in unnecessary medical procedures, such as hysterectomies, or dangerous complications during childbirth, surgery, or after injuries.

Given how common VWD is, the American College of Obstetricians and Gynecologists recommends screening for VWD in any adolescent experiencing severe menstrual bleeding (menorrhagia). They also advise screening for adult women with unexplained heavy periods and before any hysterectomy that is being considered due to excessive menstrual bleeding.